Hesperian Health Guides
Talking with children 6 to 8 years old
HealthWiki > Epilepsy and Seizures > Chapter 8: Talking with children about epilepsy and seizures > Talking with children 6 to 8 years old
What happens during their seizures. Children at this age need to know what happens so they can protect themselves, know what they can ask of others, and what to do after they have a seizure. Make sure they know if they may fall or drop things they are holding so they and others around them can try to make the seizure as safe as possible.
A child is likely to feel embarrassed if their seizures cause them to wet or soil themself. Help the child understand this is part of their seizure, not because they are âbabies.â Speak openly with your childâs teachers, school nurse, or administrator about how some people lose bladder or bowel control during a seizure. Ask them to avoid drawing attention to your child if it happens to them. Pack an extra set of clothes in your childâs backpack or leave clothes with a teacher so they can help your child change after a seizure.
If the child will need to sleep or rest quietly after a seizure, make sure they and their teacher know it is OK to need this. Encourage the child to explain to their friends that resting helps them recover.
Avoiding seizure triggers. If you know what triggers a childâs seizures, talk together about how to avoid those triggers. For example, depending on the trigger, you might suggest that the child not eat too much sugary food, not exercise so much they get out of breath, avoid too much time in the sun, stop playing when they feel tired, or rest more when they have a cold or infection.
Why seizures happen. Find a way to explain that your child will understand. Here are some examples that might work for you and your child:
Taking medicine. Children at this age tend to like and depend on routines. Parents and caregivers still have to remind and support them, but can encourage children to take responsibility for remembering to take their antiseizure medicine.
Contents
Activity
Make a chart: Medicine superstars
Draw a simple chart with rows and columns for each day of the week (see example below).
Explain to your child that every time they take their medicine on time, they get to mark the chart with a star or other shape.
When your child earns 7 marks in a row, offer a small reward such as an extra story or a weekend activity, anything that works for your family.
Asking for help. Having a seizure is nothing to be ashamed of. If the child knows they are going to have a seizure, they can ask for help to stay as safe as possible. If they are feeling poorly while recovering from a seizure, they can also ask for help to get what they need to feel betterâa drink of water, dry clothing, a quiet place to rest. The more people who know about a childâs epilepsy and what they need to recover, the easier it will be for them to avoid harm and regain comfort.
Fighting stigma and wrong ideas. If a child tells you that someone has treated them poorly because of their epilepsy, offer words of comfort and remind them that not everyone understands epilepsy. Explain that people are often afraid of things they do not understand and will make things up or repeat things they have heard others say, even if they are not true. Talk with the child about how they can speak up against teasing and bullying, and let them know you will support them. Help them think about and practice what they could say to a person who insults them (see âHow to stand up to bullies: Tips for young peopleâ).
Ask your child if they would like you to talk about epilepsy with other parents or reach out to teachers or a neighborhood group to organize a seizure first aid training. Be sure to follow through on what you offer to do. Invite them to help if they want to.
Speaking out against stigma. is not the responsibility of a child with epilepsy or their family alone. Children learn by watching adults around them, and parents and caregivers need to prevent bullying and instead act to create communities where kindness and respect are the norm. Accept differences among people, pay attention when others speak, oppose bullying, and praise your child when they share toys or help another person to model behaviors you would like them to develop.
| Prevent physical and sexual abuse of children with epilepsy |
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Children with epilepsy are at a higher risk of being physically and sexually abused than other children. Because they are often seen as weak or different, others may try to control, frighten, or exploit them. When they lose consciousness during a seizure, or need time to recover from a seizure, they become more vulnerable to abuse. Usually, abuse happens in secret and is carried out by someone the person knows. Talk to children about their right to keep their bodies private and say no. Be aware of signs of physical and sexual abuse:
Your body belongs to you. Itâs OK to say ânoâ if someone tries to touch you in a way that feels uncomfortable. By openly addressing everyoneâs right to be free of physical and sexual abuse, all children, including those with epilepsy, are more likely to be protected. As you strengthen a childâs self-respect and self-confidence, they learn that they will be heard and supported when they speak about their feelings and experiences. Parents, caregivers, and community leaders can work together to create safe environments at home, school, and in the community, and to hold abusers accountable. For information about child abuse and how to help, see Hesperianâs Promoting Community Mental Health, Chapter 5. |
Talking about absence seizures
While absence seizures can happen at any age, they are most commonly recognized when children are between 6 and 8 years old.
What happens during their seizures. Children who have absence seizures may suddenly stop moving, stare blankly, or smack their lips. These episodes usually last only 3 to 15 seconds, but they may happen many times during a dayâsometimes even hundreds of times! Usually, a child having an absence seizure will not know it is happening.
Helping a child with absence seizures. First, explain to the child that their absence seizures are a health condition and not something they can control. When you notice an absence seizure happening, guide the child away from any danger and stay with them until they are alert again.
Then begin to organize a safety net and support system by telling people close to the childâsiblings, neighbors, the childâs friends and their familiesâwhat an absence seizure is and what to do when one happens.
What you see during an absence seizure. If you are looking at a child having an absence seizure, you might mistakenly think they are not paying attention. It may take a while before you recognize that a childâs blank stare could be a type of seizure.
Absence seizures at school. The brief, painless episodes of âzoning outâ during absence seizures are typically followed by a rapid recovery. It is important for parents to talk to teachers so they understand it is not a problem of ânot paying attention.â
Parents can encourage children to feel comfortable talking to teachers about what they experience. When teachers listen without being judgemental and offer to help rather than dismiss what the child has to say, they help to build trust and safety in the school.
Promoting epilepsy awareness with puppets
Puppets are a great way to teach children about epilepsy. Children (and adults!) are attracted by the entertainment of a puppet show. A good story and a few memorable characters make it much easier to communicate about and understand difficult or sensitive topics. Children with epilepsy who might not be able to talk about their feelings can learn from puppets that mirror their feelings, teaching them and others what it can feel like to have epilepsy.
In Chile, puppets take the stage to shine a light on epilepsy
Community health promoters in Chile created and filmed a puppet show to raise awareness about epilepsy in elementary and middle schools.
The video features puppet Juanito, who attends school with his friends and has a caring and supportive family. One day during recess, Juanito has a seizure on the school playground.
His alarmed but quick-thinking classmates rush to tell their teacher that Juanito needs help.
After making sure Juanito is safe, the teacher asks the students to describe what they saw. This not only helped the teacher understand the situation but also educated the children about seizure symptoms.
After Juanito recovers, the teacher speaks with him gently and calmly. She suspects Juanito may have epilepsy.
We follow Juanito as he visits the doctor with his parents, spends time at home with his grandmother, and plays with friends at the playground. In each setting, Juanitoâs experiences spark conversations about epilepsy, spreading awareness among different community members.
To see if the video helped children learn, the community health promoters asked students some questions about epilepsy before and after showing it. Even children who had not heard of epilepsy before knew what to do after watching it when asked, âWhat should you do if your friend has a seizure?â
How to make puppets at home
Simple puppets to entertain and teach children about epilepsy can be made at home. Puppet stories can describe familiar experiences, the adventures of epilepsy superheroes, and everything in between. Puppets can be made from paper glued onto sticks, using simple materials like something to draw with (markers, crayons, colored pencils), paper or cloth scraps, scissors, short sticks, and glue (or needle and thread). Or you can make sock puppets.
Together with your child, draw a few faces on paper or make them out of scraps of cloth. Glue or sew each face onto a stick or sock. Let the child name each puppet. Use them to tell stories about different topics, like what happens when a person has a seizure, what questions a doctor might ask about seizures, or how to help when someone is having a seizure.
A puppet made from a sock looks alive!
- Fit the sock over your hand.
- Make the mouth by pushing in the cloth between your thumb and fingers.
- Add eyes, nose, and hair to the sock.