Hesperian Health Guides
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These valued advisers provided essential early guidance or ongoing support: Elaine Abrams at ICAP; Christo Greyling and Stuart Kean at World Vision; Noreen Huni at REPSSI, whose certificate program for community home-based care providers inspired us immensely; Ronnie Lovich, at Save the Children; Pascal Mailu and Natasha Martin of G.R.A.C.E. in Kenya; Wairimu Mungai of WEMIHS in Kenya; Christian Pitter, at EGPAF; Feliciano dos Santos at Estamos in Mozambique; and Zanele Sibanda, at Firelight Foundation.
Special recognition goes to: Jonathan Mermin (in the US and Uganda) and Reuben Granich for early support of our efforts to understand the impact of HIV on children and families, and to Deborah Bickel who drafted material — including the story of Gideon and his sisters in Chapter 2 — for an earlier, unpublished project.
Advisers and reviewers
Our materials depend greatly on the thoughtful contributions of dozens of individuals, who provide help of all kinds. We cannot thank them enough.
The following community groups gave generously of their time and knowledge, organizing individual feedback and group discussions of draft material, and sharing years of deep and varied experience. Their incredibly helpful criticism, suggestions, and perspective greatly informed our work.
African Network for Care of Children Affected by HIV/AIDS—ANECCA
African Palliative Care Association—APCA
Catholic Relief Services
Elizabeth Glaser Pediatric AIDS Foundation
Fishers Union, Tanzania
Forum for the Development of Youth with Disability—FDYD, Malawi
Global Strategies for HIV Prevention
ICAP at Columbia University
Isibindi, South Africa
Kabangwe Creative Initiative, Zambia
Life Concern, Malawi
Little Elephant Training Centre for Early Education—Letcee, South Africa
mothers2mothers, South Africa
Pediatric Adolescent Treatment Africa— PATA, South Africa
PATH, formerly Program for Appropriate Technology in Health
Progressive Care Coalition, Kenya
Regional Psychosocial Support Initiative— REPSSI, South Africa
Save the Children
Solidarity and Action Against the HIV Epidemic in India—SAATHII, India
Sonke Gender Justice, South Africa
Tanzania Home Economics Association— TAHEA
Thandanani, South Africa
WEM Integrated Health Services —WEMIHS, Kenya World Vision
We are deeply grateful for the funding provided by the following donors, whose commitment to children and families affected by HIV made this book possible:
AIDS-Free World, Branson Family Foundation, Conrad N. Hilton Foundation, Firelight Foundation, Flora Family Foundation, Gilead Sciences, Inc., Global Fund for Children, John M. Lloyd Foundation, Kind World Foundation, MAC AIDS Fund, May and Stanley Smith Charitable Trust, Moriah Fund, New Field Foundation, Newman’s Own Foundation, UMCOR - United Methodist Committee on Relief, United Methodist Church – Women’s Division, Vitol Foundation, and Wyomissing Foundation. General support, which allows for updating, distribution, translation, digital development, and carries us over gaps in project funding, was provided by Cogan Family Foundation, Lakeshore Foundation, Partnership Foundation, Sprocket Foundation, West Foundation, and a gift from the Betsy Moore Fleet Estate.