Hesperian Health Guides
Chapter 54: Work: Possibilities and Training
Who does most of the work within a family depends on local customs and the familyās situation. In most poor rural families nearly everyoneāwomen, men, and childrenāhelp with the work of survival. By the time they are 5 or 6 years old, children may be helping to take care of the babies, feed the chickens, herd the goats, shell and clean the grain, and to carry out other tasks so that the older members of the family are free to do other work. In many societies, children by age 8 or 10 bring in more income (food or money) than it costs their families to take care of them.
Work that frees people and work that oppresses them
Workāwhether it is done by adults or childrenācan be either a good or bad experience. It can help persons gain dignity and independence. Or it can take away their dignity, freedom, and health. How workers are affected depends on work conditions, on the fairness of wages, on workersā rights, and on how much respect and equality exists between workers and bosses.
In some situations, especially in cities, many children are forced to work long, hard hours in unsafe or unhealthy work conditions for very low pay. Such child labor is cruel, and may result in permanent injury to the childās body and spirit.
In some rural areas, children from the poorest families must also work long, hard hours under difficult conditions. But for many rural children, the opportunity to help their families with the labor of production and survival is a greater adventure than is play. The chance to take care of a real baby (not just a doll) or to help grow the family food, gives many farm children a feeling of importance, self-confidence, and personal worth that is not often seen in city children.
As a child grows up, to be wanted and well cared for is not enough. A young person needs to feel that they are needed. To become independent can be important. But just as important is to develop an ability to do things for and with others, to contribute toward meeting the needs of family, friends, and community.
Too often children with disabilities are not given the opportunity to become helpful or needed, or to learn the skills to contribute in an important way to their family and community. The family and community need to look ahead to the childās future. They need to find ways to build on whatever strengths she has, so that she can have a full and meaningful role in the community.
A money-earning job is not the only meaningful role in society
In some cultures, especially in Europe and the United States, great importance is placed on work to earn money. Often it seems that a personās worth is measured by how much money they make. Where such a value system exists, a standard goal of rehabilitation is to prepare people with disabilities to work at some kind of money-earning job.
But caution! This goal of a paid job may not be appropriate in some parts of the world. Traditions and local values differ from place to place. Some societies are more accepting of persons who do not earn or produce, as long as they contribute and take part in other ways.
Also, we must remember that in poor countries the unemployment rate (people without work) is often very high, even for people without disabilities. It may be very difficult for a a person with disabilities to get a job, even if well-trained.
There are many ways, other than by working for money, that people with disabilities can contribute to their family and community. They may be able to learn skills to help with daily activities in the home. Or they may become leaders for community action. As we discussed in Chapter 45, villagers with disabilities who are unable to do hard physical farm work, often make outstanding health workers (paid or volunteer), rehabilitation workers, popular organizers, or defenders of human rights.
It is important that rehabilitation programs have a broad view of how people with disabilities might work or fit into the community. Too often skills training prepares a person with physical disabilities to do jobs that a person without disabilities could do just as well. The challenge, whenever possible, should be to build on the unique strengths, experience, and qualities of the person with disabilities: help her to find a role in society that she can do better than most people without disabilities. Disability does make a person different in certain ways, for better and for worse. Rather than pretending that the difference does not exist, it is wiser to accept the differences and look for ways that having disabilities helps to deepen or strengthen the person. Help the person to have not just an ordinary role in society, but one that is in some ways outstanding. Persons like Helen Keller (a woman with complete loss of vision and hearing who became a social leader and agent for change) can be our role models.
Rehabilitation programs and families should avoid planning a childās (or adultās) life work, or role in the community, for him. Rather, we should help make available as wide a range of opportunities as possible.
Our goal should always be to open doors for the child, not to close them.