Hesperian Health Guides

Hesperian Health Guides

People with Disabilities


Below are many resources for people with disabilities, which we hope you will find useful. If you are looking for even more information, we have a wealth of other hard-to-find books and excellent disability organizations listed in the Resources sections of our books Disabled Village Children, Helping Children Who Are Blind, and Helping Children Who Are Deaf.

Jump to sections below: Blindness, Deafness, Other Common Disabilities, Aids and Appliances, Women with Disabilities, Awareness Raising and Training.

Contents

Blindness

Blind Childrens Center
This is an organization dedicated to serving blind children 5 years of age and younger. They produce a lot of written materials for families with blind children.

Blind Babies Foundation
Source of materials and publications, videos, and fact sheets for families with infants and young children who are blind.

Child-to-Child Trust
Institute of Education, 20 Bedford Way, London, WC1H 0AL, UK. Tel: 44-207-612-6649. Fax: 44-207-612-6645. E-mail: ccenquiries@ioe.ac.uk.

Christoffel Blindenmission International (CBMI)
Operates eye units, mobile eye-care services, village health centers, schools, and training institutions in 94 countries.

Eye Diseases in Hot Climates by John Sandford-Smith, International Center for Eye Health
A valuable resource for health programs. It teaches how to identify, prevent, and provide basic care for the most common eye diseases found in the tropics.

Helen Keller International
Founded in 1915 by Helen Keller and George Kessler, Helen Keller International (HKI) is among the oldest international NGOs (non-governmental organizations) devoted to preventing blindness and reducing malnutrition in the world. They currently work in 22 countries: 13 in Africa, 8 in Asia-Pacific, and the United States.

Hilton/Perkins Program
Founded in 1832 as the first school for the blind in the US. Today they also provide technical assistance and support for the development of programs for multi-handicapped blind and deaf-blind children in developing countries.

PLAN International
Plan is one of the oldest and largest children's development organizations in the world. They work directly with communities and families in 50 developing countries across Africa, Asia and the Americas.

Sight Savers International
Works with local partners in 25 countries, providing eye care, cataract surgery, education, and training.

World Blind Union
The World Blind Union (WBU) unites people with visual disabilities in member organizations around the world. They work to promote equal opportunities for the blind; to raise the status of blind women, DeafBlind persons, blind people with multiple disabilities; and to prevent blindness worldwide.

Deafness

Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)
AG Bell offers its members a wide range of programs and services about hearing loss, resources, and support and encouragement from people who know and understand deaf issues and needs. AG Bell publishes and distributes books, brochures, instructional materials, videos, CDs, and audiocassettes related to hearing loss.

Ali Yavar Jung National Institute for the Hearing Handicapped
Collects and shares information about deafness, offers training, and develops strategies for early identification, intervention, and rehabilitation services. Source for teaching aids, films, and audio visuals on vocational training, job placement, and other issues.

Christian Blind Mission International (CBMI)
The Christoffel Blindenmission International (CBMI) works to prevent blindness and supports medical, educational, and community-based rehabilitation activities for disabled persons. They also offer support to deaf and hard-of-hearing people.

Deaf Africa Fund (DAF)
Promotes educational opportunities for deaf children in poor countries.This link is an email address.

Delhi Foundation of Deaf Women (DFDW)
Established in 1973 as a club for deaf women in Delhi, DFDW today is a Rehabilitation Center for all hearing-impaired persons in India.

Disabled Children’s Action Group (DICAG) South Africa
DICAG is a campaigning organization that helps to raise the level of awareness of disability and challenges stereotypes and perceptions of disabled people in South Africa. DICAG aims to ensure equal opportunities for disabled children, especially in education. This link is an email address.

Enabling Education Network (EENET)
This information-sharing network promotes inclusion of marginalized groups in education. They produce a regular newsletter which publishes case studies of exciting programs worldwide and includes contributions of parents’ groups. They offer many useful English language publications. The website has a section dedicated to deaf issues.

The Forest Bookshop
A comprehensive resource for books, videos, and CD-ROMs on deafness and deaf issues. Also distributes books published by Gallaudet University.cated over another.

Gallaudet University
Gallaudet University is the only liberal arts university in the world designed exclusively for deaf and hard-of-hearing students. It is also an excellent source for finding deaf books, journals, and current research.

International Deaf Children’s Society (IDCS)
An organization of families and caregivers of deaf children, as well as the organizations and professionals who work with them. Established to share information and experiences, IDCS provides a forum for ideas, discussion, research and information on all aspects of childhood deafness on a global scale.

Royal National Institute for the Deaf (RNID)
The RNID has many online publications and useful links, as well as a large library database with detailed information about resources for people who are deaf. They also have a training and information resource called Deaf at Birth.

World Federation of the Deaf (WFD)
One of the oldest international organizations of deaf people, WFD includes national organizations of deaf people in 120 countries. WFD works for human rights and equal opportunity for deaf people, and the right of deaf people to use sign language to get education and information. WFD initiated the annual Deaf Awareness Week to celebrate the culture, heritage, and language unique to deaf people of the world.

Books about Deafness

The Deaf Peer's Education Manual, Sahaya Deaf Kenya
A training manual developed by the Kenyan Peer Education Network, with interactive-based activities for basic understanding of sexual health, HIV and AIDS.

Hearing Aids: A guide, National Deaf Children’s Society (NDCS), UK
Information about different types of hearing aids, care and maintenance, and simple repairs. Provides a range of information on the different types of hearing aids available. This booklet is aimed at both parents and professionals.

Hearing and Communication Disorders by Sheila W. Wirz and Sally W. Winward, TALC
A manual for rehabilitation programs that include or want to include services for deaf children or those with other communication problems. It simplifies a lot of techniques used by deafness professionals.

Choices in Deafness: A parent’s guide to communication options
(1996, 275 pages) by Sue Schwartz
www.woodbinehouse.com
Explanations of hearing loss followed by parents discussing why and how they made their choices among different approaches to communication.

The Deaf Child in the Family and at School: Essays in honor of Kathryn P. Meadows-Orlans
(2000, 336 pages) P.E. Spencer, C.J. Erting, and M. Marschark
www.erlbaum.com This book explains the development of deaf and hard-of-hearing children in the context of family and school. It shows the role and effects of school environments on development. Each chapter deals with issues of culture and expectations.

Deaf Friendly Pre-Schools and Nurseries
(2003, 37 pages) by Anne-Marie Hall and Hilary Sutherland
www.ndcs.info Practical guidebook for those working with very young deaf children on how to include deaf children and understand their particular needs. Information for staff in pre-school settings who have a deaf child attending. Covers activities including reading books, group and music time, playing games, and behavior and discipline. Free.

Deaf Friendly Schools: A guide for teachers and governors, with a supplement toolkit on inclusion:Deaf children in mainstream schools
(2002, 32 pages) by Clara Ratcliffe
A guide for staff in mainstream secondary or primary schools who have deaf pupils. Information on teaching strategies, inclusion, communication, deafness, and technical support.

Deaf Like Me
(1985, 292 pages) by Thomas S. Spradley and James P. Spradley
www.gupress.gallaudet.edu
Deaf Like Me is an account of parents coming to terms with their baby girl’s profound deafness. It expresses the love, hope, and anxieties of many hearing parents of deaf children. In the epilogue, Lynn Spradley as a teenager reflects upon being deaf, her education, her struggle to communicate, and the discovery that she was the focus of her father’s and uncle’s book.

Developing Personal Safety Skills in Children with Disabilities
(1995, 214 pages) by F. Briggs
Offers learning activities to develop self esteem, assertiveness, and independence — skills that children with disabilities need to safeguard themselves. It can be used to teach children to recognize dangerous situations, take action, handle approaches by strangers, communicate their feelings, and to recognize right and wrong ways of touching.

Family Action for Inclusion in Education
(2002, 120 pages)
www.eenet.org.uk
A practical and inspirational handbook with stories of family-based advocacy organizations that have helped to transform educational systems in southern Africa, South Asia, Europe, and Australia. Useful for family and community members who want to form a support group or challenge exclusion. Provides valuable insights into the activities, thoughts, and feelings of parents involved in fighting for the inclusion of their disabled children.

Kid-Friendly Parenting with Deaf and Hard-of-Hearing Children: A treasury of fun activities toward better behavior. (1995, 373 pages) by D. Medwid and D. Chapman-Weston Gallaudet University Press This step-by-step guide presents hundreds of ideas and activities for use with children who are deaf or cannot hear well, ages 3 to 12. In addition to short, clear descriptions of parenting techniques, each chapter includes a commentary from deaf and hearing experts. Information is provided about special resources and support services.

Let’s Communicate: A handbook for people working with children with communication difficulties
(1997, Ref: WHO/RHB 971) Co-published by WHO, UNICEF, and Ministry of Health, This consists of a series of booklets, one of which is about working with children with hearing impairments.

The New Language of Toys: Teaching communication skills to children with special needs
(1996, 289 pages) by S. Schwartz and J.E. Heller
This book provides ideas to parents and professionals about how to use everyday toys to stimulate and promote language development in children with additional needs.

Not Deaf Enough: Raising a child who is hard-of-hearing with hugs and humor
(1996, 242 pages) by Morgan Candlish and Patricia Ann
This book demonstrates a family’s support for their youngest child who has a mild-tomoderate hearing loss. His mother explains the challenges that the family faced and conquered together.

Omni-Directory
(2003)
National Deaf Children’s Society (NDCS)
A guide to products and services for families of deaf children, young people, and those professionals working with them.

The Parents’ Guide to Cochlear Implants
(2002, 168 pages)
Patricia M. Chute and Mary Ellen Nevins
Gallaudet University Press
Make informed decisions about cochlear implants with this easy-to-follow guide.

Preparing Teachers for Inclusion
(1996, video)
EENET
This video package from Lesotho features footage of deaf children included in their local schools.

The Psychology of Deafness:Understanding deaf and hard-of-hearing people
(1990, 292 pages) by M. Vernon and J.F. Andrews
www.umi.com
This book helps explain how the lives of people who are deaf or cannot hear well are different from the lives of people who can hear. It helps explain the level of stress involved in coping with the world.

Quality Standards in the Early Years: Guidelines on working with deaf children under two years old and their families
(2002, 32 pages) National Deaf Children’s Society (NDCS)
Gives guidelines for good practices in the education of deaf children, covering the early years, working in partnership, and inclusion.

Raising and Educating a Deaf Child:A comprehensive guide to the choices, controversies, and decisions faced by parents and educators
(1999, 256 pages) by Marc Marschark
[http:www.oup.co.uk/bookshop/ Oxford University Press]
Discusses the implications of raising and teaching a child who is deaf or cannot hear well, trying to educate parents so they can make knowledgeable decisions. Covers such topics as medical causes of early hearing loss, language acquisition, social and intellectual development, education, and environment. Includes a phone number and address section on information sources and organizations serving deaf children.

Raising Your Hearing Impaired Child: A guideline for parents
(1982, 238 pages)S.H. McArthur
Written by a teacher, who is also the mother of two deaf daughters, this book offers ideas and suggestions for parents raising their deaf child using oral methods.

The Silent Garden: Raising your deaf child
(Revised edition, 2002, 304 pages) by P.W. Ogden
Gallaudet University Press
Ogden, who is himself profoundly deaf from birth, provides a foundation for parents to make the difficult decisions necessary to help their deaf child reach full potential.

Speak to Me!
(1995, 154 pages) by Marcia Calhoun Forecki
Gallaudet University Press
A down-to-earth account of how a single mother copes with accepting her 18-month-old son’s deafness.

Teaching Children to Protect Themselves
(2000, 154 pages) by F. Briggs and M. McVeity
Allen and Unwin
A handbook that offers guidance to teachers and counselors on how to protect young children from sexual abuse. It has many useful activities to help children learn about staying safe.

Understanding Deafness
(2003, 28 pages) National Deaf Children’s Society (NDCS)
An introductory guide to different types of deafness, hearing tests, audiograms, communication, and language.

Arts and Disabilities by Florence Ludins-Katz and Elias Katz, National Institute of Art and Disabilities
Ideas for starting an art center for disabled people. Materials, equipment, aids, and instruction needed for many crafts and art forms.

When Your Child is Deaf: A guide for parents
(2002, 191 pages) by David Luterman and Mark Ross
York Press, Inc.
Information, advice, and encouragement for parents about the emotional and educational processes of coming to terms with a hearing impairment in their child.

You and Your Deaf Child: A self-help guide for parents of deaf and hard-of-hearing children
(1998, 240 pages) by John Adams
Gallaudet University Press
This down-to-earth book focuses on feelings about hearing loss, the importance of communication in the family, and effective behavior management. Many chapters contain practical activities and questions to help parents learn new skills. Appendices include references, general resources, checklists, and guidelines for evaluating educational programs.

The Young Deaf Child
(1999, 214 pages) by David M. Luterman and others
This book provides information to guide caregivers in raising a deaf child when hearing loss is discovered. It presents historical information plus the choices that are available so that parents can decide what is right for their family. The authors recognize that each family is different and has their own needs, so no one method is advocated over another.

Sign Language

The Signing Exact English (S.E.E.) Center for the advancement of deaf children
Signing Exact English (SEE) is a sign system that matches signs with the English language. Unlike American Sign Language (ASL), which has its own grammar, syntax and idioms, SEE is is a visual form of English, with English sentence structure, idioms, verb endings, etc.

Deafness: A guide for parents, teachers, and community workers
(2001, 32 pages) by Akach Philemon
unesco.org
This short and simply-written UNESCO publication explains many complex issues related to deafness, sign language, and the education of deaf children. It is intended to raise awareness among parents, teachers, doctors, nurses, and social workers of the importance of sign language for deaf children, particularly in the early years. It is accompanied by a video. Free.

The Dictionary
(1993, 479 pages)
Signing Exact English
Box 1181, Los Alamitos, CA 90720, USA.
A very complete dictionary of sign language in English, very useful to anyone who wants to learn the North American system. Signing Exact English also offers many other publications and visual aids for teaching and learning sign language.

Sign Language
(2003, 6 pages) National Deaf Children’s Society (NDCS)
A practical guide on learning sign language and how to find out more information.

Other Common Disabilities

Arthritis

Arthritis Foundation
A great variety of written materials on the different aspects of several types of arthritis, including juvenile arthritis. Updated information on current research and medical treatment to function with and manage arthritis.

Paralysis

Christopher and Dana Reeve Foundation
Paralysis Resource Center Fact sheets with disability resources for 31 countries. Where possible the country fact sheets are in the native language of that country.

Epilepsy

Epilepsy Foundation of America
An organization that offers a great collection of publications and videos on all the different aspects of epilepsy. These are educational materials, designed for individuals with epilepsy, their families, teachers, and society in general.

International Bureau for Epilepsy (IBE)
An international organization of laypersons and professionals that serves to develop, support and link national epilepsy organizations around the world.

Seizures and Epilepsy in Childhood—A Guide
(Third edition 2003, 432 pages) by Freeman, John M., Vinig, Eileen P.G. and Pillas, Diana J.
Johns Hopkins University Press, 2715 North Charles Street, Baltimore, MD 21218-4319, USA 1990
Clearly explains many aspects of epilepsy in children. A good resource for a child with epilepsy and his family. It can also be bought from the Epilepsy Foundation.

Leprosy

International Federation of Anti-Leprosy Associations (ILEP)
ILEP publishes well-illustrated manuals for the diagnosis and treatment of leprosy and has member organizations in many countries.

A footwear manual for leprosy control programs. Volumes I and II
edited by Neville, P. Jane
Two books about special footwear for persons with leprosy. The first book is a guide for setting up a footwear making shop. The second book deals with technical aspects of making footwear and has clear, easy to follow instructions for production of shoes, boots and sandals. Free for programs serving people with leprosy.

ILEP Learning Guide No 1. How to diagnose and treat leprosy
(2001)
ILEP, 234 Blythe Road, LONDON W14 0HJ, UNITED KINGDOM
A new, well-illustrated publication suitable for the wide range of health professionals who need to recognize and treat leprosy.

ILEP Learning Guide No 2. How to recognize and manage leprosy reactions
(2002)
ILEP, 234 Blythe Road, LONDON W14 0HJ, UNITED KINGDOM
A comprehensive guide to identifying and managing leprosy reactions; includes details of how to safely prescribe corticosteroids.

AIFO (Associazione Italiana Amici di Raoul Follereau)
AIFO, an Italian NGO, provides support to projects in the global South. At present AIFO is involved in over 180 projects in 57 countries, supporting projects on leprosy and primary health care; rehabilitation of disabled persons; and support for vulnerable children.

Insensitive Feet
(1966) by Brand, P.
ILEP, 234 Blythe Road, LONDON W14 0HJ, UNITED KINGDOM
A good background to the problems of insensitive feet and the prevention of disability. Suitable for doctors and health workers.

Muscular Dystrophy

Muscular Dystrophy Association, Inc.
Lots of pamphlets on all the different types of muscular dystrophy. This association can be very helpful for children who live in the United States because they provide, and can help find, many services. (Their main focus is finding a cure.)

Down Syndrome

National Down Syndrome Congress
Founded in 1973, the NDSC promotes the interests of people with Down syndrome and their families through advocacy, public awareness, and information dissemination. On-line information covering all aspects of Down syndrome in English and Spanish, with links to Down syndrome organizations in Latin America.

Polio

Post-Polio Health (formerly Polio Network News), Post-Polio Health International]
Quarterly report with international circulation. Focuses on long-term effects of polio. It promotes scientific research on polio and proposes the creation of a worldwide network of people with polio.

Poliomyelitis: A Guide for Developing Countries—Including Appliances and Rehabilitation for the Disabled
by Huckstep, R.L.
Churchill Livingstone, Robert Stevenson House, 1-3 Baxter’s Place, Leith Walk, Edinburgh EH1 3AF, UNITED KINGDOM.
This is an excellent book that went out of print. Very complete. Includes braces, assistive equipment, rehabilitation, and information for hospital care and surgery. Well adapted for poor countries and community programs. You may still be able to locate a copy.

Spina Bifida

The International Federation for Spina Bifida and Hydrocephalus (IF)
IF is the world-wide umbrella organization for Spina Bifida and Hydrocephalus organizations, with regional and national organization contacts in over 50 countries.

Bowel Continence and Spina Bifida
Spina Bifida Association of America (SBAA)
4590 MacArthur Boulevard NW Suite 250, Washington DC 20007, USA
This and other publications are available from SBAA. Write for a list of their materials.

Introduction to Spina Bifida
Spina Bifida Association of America (SBAA)
4590 MacArthur Boulevard NW Suite 250, Washington DC 20007, USA.
ILEP, 234 Blythe Road, LONDON W14 0HJ, UNITED KINGDOM
Basic information, especially useful for those who live in the USA and can access the care and services available.

Sexuality and the Person with Spina Bifida
Spina Bifida Association of America (SBAA)
4590 MacArthur Boulevard NW Suite 250, Washington DC 20007, USA.
ILEP, 234 Blythe Road, LONDON W14 0HJ, UNITED KINGDOM
An important topic explained in easy terms. Different aspects of sexuality—development, activity, society— relevant to persons with spina bifida.

Spina Bifida and You: A Guide for Young People
by Welch, Collette
Association for Spina Bifida and Hydrocephalus (ASBAH)
42 Park Road, Peterborough, PE1 2UQ, UNITED KINGDOM
This and many other publications on spina bifida are available from ASBAH. Some of their materials are excellent.

Cerebral Palsy

United Cerebral Palsy
UCP is a good resource for organizations who serve as global leaders in serving people with disabilities.

Handling the Young Cerebral Palsied Child at Home
(1975, 337 pages) by Finnic, Nancy
Penguin USA, PO Box 999, Dept. 17109, Bergenfield, NJ 07621 USA
Excellent, complete and detailed information for home care. May be too much detail for some families—but a highly-recommended resource for a community program.

Treatment of Cerebral Palsy and Motor Delay
(Fourth edition, 2003) by Levitt, Sophie
Wiley-Blackwell Publications
10475 Crosspoint Blvd. Indianapolis, IN 46256, USA.
An advanced book, mostly on physiotherapy. Excellent information but difficult language and presentation. Many good pictures.

Positioning the Client With Central Nervous System Deficits: The wheelchair and other adapted equipment
(Second edition 1985, 237 pages) by Bergen, Adrienne Falk and Colangelo, Cheryl
Valhalla Rehabilitation Publications, PO Box 195, Valhalla, NY 10595 USA
Detailed, in-depth discussion of adaptive seating to meet the needs of individual children with cerebral palsy. Excellent illustrations. Language is fairly complex.

Spinal Cord Injury

Spinal Cord Injury—A Manual for Healthy Living
One Baylor Plaza, Houston, Texas 77030, USA
Excellent (but expensive), accessibly written guide for people with spinal cord injuries and their families and caregivers. Many good illustrations. Has 29 sections, including bowel and urine management, skin care, sexual adjustment, medications, and others.

Tetraplegia and Paraplegia: A Guide for Physiotherapists
(1991, 219 pages) by Bromley, Ida
Churchill Livingston Sales, Elsevier Science, Footscray High Street, Sidcup, Kent DA4 5HP, UNITED KINGDOM
Useful information on exercises, transferring, and how to shift weight to prevent pressure sores. Some good illustrations. Very technical.

Aids and Appliances

Motivation
Designs, fabricates, and distributes a wide variety of wheelchairs, tricycles, and supportive seating aids that are all developed in collaboration with members of the disability community. This process relies heavily on feedback from actual wheelchair-users and other disabled individuals.

Whirlwind Wheelchair International (WWI)
WWI developed the Whirlwind wheelchair, a lightweight, low-cost, sturdy wheelchair designed for rough urban and rural conditions in developing countries. WWI works with an international network of wheelchair workshops to continually update its designs.

Books about Aids and Appliances

Alternative Limb Making
by Pluyter, B.
Healthlink Worldwide
56-64 Leonard Street, London EC2A 4LT, UNITED KINGDOM
Teaches how to manufacture and fit low-cost, below-knee prostheses. Detail on innovative products. Provides theory and technical information.

Extraordinary Play with Ordinary Things
by Sher, Barbara
Therapy Skill Builders, 555 Academic Court, San Antonio, TX 78204 USA
Play activities and games for children with varied levels of disability. Designed to encourage thinking, movement, coordination and balance. It uses materials and objects available in most homes.

How to Make Basic Hospital Equipment
(1979, 86 pages) Compiled by Roger England
Practical Action Publishing
The Shumacher Centre for Technology and Development, Bourton on Dunsmore, Rugby, Warwickshire CV23 9QZ UNITED KINGDOM
Simple tube metal wheelchairs and other designs from Africa. Well illustrated and with useful comments. Fairly simple language.

How to Make Simple Disability Aids
Healthlink Worldwide
56-64 Leonard Street, London EC2A 4LT, UNITED KINGDOM
Many illustrations. Easy to make aids that are very useful. Many things that children can make themselves.

Independence Through Mobility: A Guide to the Manufacture of the ATI-Hotchkiss Wheelchair
by Hotchkiss, Ralf
Whirlwind Wheelchair International
San Francisco State University, 1600 Holloway Ave. SCI 251, San Francisco, CA 94132
Complete instructions to make the ‘Whirlwind’, a high-quality, low-cost steel wheelchair. See a list of books about various types of personal transport for disabled people.

MIKKY: Visual Aids and Toys
Life Help Centre for the Handicapped
Handicapped, East Coast Road, Neelangarai, Chennai 600-041, INDIA
A manual on the therapeutic uses of crafts-making. Many different crafts and a list of suppliers. Very useful if you can find or afford the materials.

More with Less: Aids for Disabled People for Daily Living
TOOL Publications, PO Box 321, 2300 AH Leiden, THE NETHERLANDS
Simply written in English, French, and Spanish, with illustrations on every page. Very good ideas.

A Plastic Caliper for Children
Handicap International
Sectur Ventes, 14 Av. Berthelot, 69361 Lyon, Cedex 07, FRANCE
A manual with all the instructions to make a plastic caliper (brace) similar to the ones we describe in Chapter 58 of Disabled Village Children. It includes information about choosing the correct caliper.

Personal Transport for Disabled People
Design and Manufacture Healthlink Worldwide
56-64 Lonard Street, London EC2A 4LT, UNITED KINGDOM
Has many good designs and plans for low-cost aids. Does not compare strengths and weaknesses or describe limitations of different designs. There is no design for wheelchairs with casters in front (which are needed for many areas).

Shared Moments: Learning Games for Disabled Children
by Rogow, Sally M.
The Disability Bookshop, PO Box 129, Vancouver, WA 98666, USA
Learning games and activities designed to stimulate and encourage babies and children with physical, visual and developmental disabilities.

Simple Below-knee Prosthesis Manufacture and Simple Above-knee Prosthesis Manufacture
Handicap International
Sectur Ventes, 14 Av. Berthelot, 69361 Lyon, Cedex 07, FRANCE
Excellent. Fairly simple methods for making prostheses. See a brief overview here

Some Crafty Things to Do
(1992, 32 pages) by Hale, Karen
OXFAM Publishing
Oxfam House, John Smith Drive, Oxford OX4 2JY, UNITED KINGDOM
A manual for making toys from many different countries. Written for children, with good illustrations.

UPKARAN: A Manual of Aids For the Multiply Handicapped
(1992, 32 pages) by Hale, Karen
www.nrcissi.org
Bandra Reclamation, K.C. Marg, Bandra (West), Mumbai 400 050, INDIA
Many excellent and mostly simple aids, well illustrated. Written in English and Hindi.

Women with Disabilities

ABILIS
ABILIS is part of the international Independent Living and Disability Rights Movement. They give grants for projects run by disabled people in developing countries that focus on human rights and women with disabilities.

Disabled Peoples’ International (DPI)
DPI promotes the human and economic rights, and social integration of people with disabilities. Information on issues including women’s health care, human rights, independent living, and social justice. Special focus on grass-roots development. Has local offices in over 110 countries.

Leonard Cheshire International (LCI)
The work of LCI includes projects in education, employment, economic empowerment, rehabilitation and day care services, short and longer-term residential care, and community programs. Their website lists resources and training materials.

Mainstreaming disability in development: lessons from gender mainstreaming
(PDF), by Carol Miller and Bill Albert
Explains mainstreaming, as a strategy of feminist advocacy in the context of development, and draws comparisons with the history of the disability movement. Includes recommendations for mainstreaming disability, and compares these with ‘good practices’ in gender mainstreaming.

Mobility International USA (MIUSA)
MIUSA works to empower people with disabilities through international exchange and development to achieve human rights. MIUSA’s website has a comprehensive listing of international disability organizations.

Mobility International India
Promotes community-based rehabilitation and mobility for persons with disabilities, especially in rural areas. Trains women with disabilities to make artificial limbs and provide rehabilitation services in their communities.

The Disabled Woman’s Guide to Pregnancy and Birth by Judith Rogers, Demos Medical Publishing
Pregnancy and childbirth information for women with disabilities, based on the experiences of 90 women with disabilities who chose to have children.

Women’s Health Information & Support Centre Easy-to-read, heavily-illustrated booklets on health. Written by and for women with learning troubles, but useful for all.

Awareness Raising and Training

Action on Disability and Development (ADD)
ADD supports active networks of disabled people in several countries. Many of ADD’s staff have disabilities themselves.

AIFO (Associazione Italiana Amici di Raoul Follereau)
AIFO, an Italian NGO, provides support to projects in the global South. At present AIFO is involved in over 180 projects in 57 countries, supporting projects on leprosy and primary health care; rehabilitation of disabled persons; and support for vulnerable children.

Asia-Pacific Disability Aids and Appliances Handbook
A worldwide federation of organizations of disabled people. Publications about social issues and the politics of disability and rehabilitation. They also publish the newsletter One in Ten, a report on what is happening around the world that may be of interest to disabled persons and their advocates.

College resources for students with disabilities
Prospective college students with disabilities will find that many campuses have offices and services that address accessibility, accommodation, and assistive technology, and that many work to create inclusive environments through specialized advocacy, support, and academic services. This site provides a helpful list of resources for a diverse range of needs.

Disability Awareness in Action
An organization dedicated to fostering the integration of disabled people and advocating respect for their rights. Excellent materials on how to organize and maintain an organization of disabled people.

Disability and Development Partners (formerly Jaipur Limb Campaign)
Disability and Development Partners (DDP) works with local partner organizations in developing countries to bring social and economic benefits to people with disabilities—especially to those who have lost limbs or the use of limbs through war, accidents, or preventable diseases.

Disability Dialogue
Supports disabled people, service providers and policy makers with practical information. It promotes the social inclusion of disabled people through community-based rehabilitation and other social action. Issues are produced by regional partners of Healthlink Worldwide. Available in English (including Braille and audiocassette editions), Hindi, Tamil, Bengali, Gujarati, and Nepali.

Disability India Network
Disability India Network has a website with comprehensive information related to disability, and works for the empowerment of persons with disabilities and equal access to healthcare, education and employment.

Disability World
This is a great site that is an internationally focused news web magazine covering disability issues. The site is useful in sorting out relevant information and is in both English and Spanish. Internet users with slower connections can load the site as text only.

Handicap International
An independent international aid organization working alongside disabled and vulnerable people in over 60 countries worldwide in situations of poverty and exclusion, conflict and disaster. Extensive in-line library on many social and health issues that affect disability.

Inclusion International
A global federation of family-based organizations advocating for the human rights of people with intellectual disabilities. II represents 200 member federations in 115 countries.

Rehabilitation International
Founded in 1922, Rehabilitation International (RI) is a worldwide network of people with disabilities, service providers, government agencies, academics, researchers and advocates working to improve the quality of life of people with disabilities. Member organizations in 100 countries and in all regions of the world.

Source International Information Support Centre
Source, is an international information support centre designed to strengthen the management, use and impact of information on health and disability. Source now has over 25,000 information resources on a range of subjects including HIV and AIDS, disability and inclusion, mother and child health, information and communication technology and participatory communication. Resources are available online, by CD-ROM and as printed materials.

Swedish Organizations of Disabled Persons International Aid Association (SHIA)
SHIA aims to strengthen the efforts of persons with disabilities to achieve equality and participation through development co-operation and partnerships between persons with disabilities in Sweden and elsewhere.

Special Needs Project
A bookstore that sells by mail. It offers a great selection of books on many different disabilities and rehabilitation.

The Ragged Edge
A bi-monthly on-line magazine by disabled people. A constant critic of disinformation and false ideas about people with disabilities. Good articles and analysis.

Teaching Skills
A package of 6 video programs that describe teaching techniques to use with children and adults who are slow to learn. Well done and at prices that community programs can afford.

Training in the Community for People with Disability, World Health Organization
Very basic information—sometimes too basic. This latest edition has been improved, but it takes a rather top-down, authoritarian approach. Very simple language. Many pictures. Part of a total plan for a ‘community-based’, government-directed program.

Books about Disability Awareness Raising and Training
The Acorn People
(1976, 80 pages) by Jones, Ron
Laurel-Leaf Books, 1745 Broadway, 10th Floor, New York, NY 10019 USA
A good, very human story about disabled children and their need for freedom, adventure, and understanding.

Bitter Pills—Medicines and the Third World Poor
(1992, 32 pages) by Dianna Melrose
Oxfam House, John Smith Drive, Oxford OX4 2JY, UNITED KINGDOM
Excellent discussion of how drug companies often exploit people and endanger their health.

Developmental Motor Activities for Therapy—Instruction sheets for children
by Sheda, Constance and Small, Christine
Therapy Skill Builders, 555 Academic Court, San Antonio, TX 78204 USA
Well-illustrated and organized activities to promote physical development and motor skills in children. Sheets can be reproduced and given to families.

Home Program Instruction Sheets for Infants and Young Children
by Jaeger, D. LaVonne
PsychCorps division of Pearson
PO Box 599700, San Antonio, TX 78259 USA
Excellent, well-illustrated book of instruction sheets for many exercises. It includes range of motion exercises. (Revised version of the first edition by Jaeger and Hewitt.)

Listening to Children
by Wipfler, Patty
Hand in Hand
PO Box 1279, Palo Alto, CA 94303, USA
A series of 6 booklets that cover crying, fear, anger, special time, tantrums, and listening. A very new and revolutionary approach for dealing with feelings and behavior. Not written specifically for disabled children but the basic ideas work for everyone.

Louis Braille: The Boy Who Invented Books for the Blind
by Davidson, Margaret
Scholastic Book Services, 557 Broadway, New York, NY 10012 USA
Excellent story for children about the accomplishments of a disabled child. Good reading for CHILD-to child activities.

A Manual of Basic Phyisiotherapy for the Use of Nurses in Rural Hospitals
(1981, 162 pages) by Hardinge, Elizabeth A., and Wilson, Patricia M.P.
Tear Fund
100 Church Road, Teddington, Middlesex, TW11 8QE, UNITED KINGDOM
Basic, clearly presented, very useful for training rehabilitation workers.

Pediatric Strengthening Program
by Stern, Linda and Steidle, Kathryn
PsychCorps division of Pearson
Therapy Skill Builders, 555 Academic Court, San Antonio, TX 78204 USA
Many playful activities to increase the strength of children with disabilities or those who are recovering from surgery. Pages can be copied and given to families so they will remember how to do the exercises with their children.

Physical Therapy Assistant’s Manual
Handicap International
Sectur Ventes, 14 Av. Berthelot, 69361 Lyon, Cedex 07, FRANCE
Three volumes of 170 pages each. Simple manuals that teach how to provide physical therapy. The first book covers theory and basic anatomy. The second book shows therapy techniques. And the third one helps you choose an exercise program according to the particular disability. Good illustrations and clearly written.

Positioning the Client With Central Nervous System Deficits: The wheelchair and other adapted equipment
(Second edition 1985, 237 pages) by Bergen, Adrienne Falk and Colangelo, Cheryl
Valhalla Rehabilitation Publications, PO Box 195, Valhalla, NY 10595 USA
Detailed, in-depth discussion of adaptive seating to meet the needs of individual children with cerebral palsy. Excellent illustrations. Language is fairly complex.

Special Education for Mentally Handicapped Children—A Teaching Manual
(Revised edition 1990, 277 pages) by Miles, Christine
Mental Health Centre, Dabgari Gardens, Peshawar Cantt., North West Frontier Province, PAKISTAN.
Excellent adaptation of special education to a developing community. Clearly written. A few good illustrations. Perhaps the best special education text for community programs.

Toilet Training in Less Than a Day
(1974, 189 pages) by Azrin, Nathan and Foxx, Richard
Simon & Schuster Mail Order, 100 Front Street, Riverside, NJ, USA
Good instructions for ‘the fast method’; oriented towards the USA and Europe.

Volver a Vivir/Return to Life
by Levine, Suzanne
The Hesperian Foundation
1919 Addison St., Berkeley, CA 94704
A photographic report on the villager-run rehabilitation project, Project PROJIMO, in Mexico.

en.hesperian.org